How the hidden trade in our sensitive medical information became a
multibillion-dollar business, but has done little to improve our health-care
outcomes
Hidden to consumers, patient medical data has become a multibillion-dollar
worldwide trade industry between our health-care providers, drug companies, and
a complex web of middlemen. This great medical-data bazaar sells copies of the
prescription you recently filled, your hospital records, insurance claims,
blood-test results, and more, stripped of your name but possibly with
identifiers such as year of birth, gender, and doctor. As computing grows ever
more sophisticated, patient dossiers become increasingly vulnerable to
reidentification and the possibility of being targeted by identity thieves or
hackers.
Paradoxically, comprehensive electronic